SCAR-15
A foundation committed to finding treatment and a cure for individuals living with Spinocerebellar Ataxia Recessive Type 15, a rare degenerative genetic disease.
Following the success of last year’s Jack Bear Foundation Launch Party, we’re excited to return this fall with the SCAR-15 Soiree: Raising the Bar for Research. This special evening will bring together families, friends, and advocates to celebrate the progress made and energize the next phase of SCAR-15 and RUBCN gene research.
Since launching in February 2024, the foundation has raised over $445,000 to support scientific discovery and outreach for this ultra-rare condition. With more than 200 guests expected, the Soiree promises a night of inspiration, community, and continued momentum for the Jack Bear mission. Hope to see you there!
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Our Story & Mission
Learn about our family and mission.
What is SCAR-15?
Learn about this rare degenerative genetic disorder.
Research
Learn more about the research process.
SCAR-15 Path To A Cure
Currently we are at Step 1 — We need your support to reach our goal of finding a cure.
You Can Help
Please Consider a Donation!
Your generous donations will continue to aid our mission to help fund research to develop treatments and a cure for SCAR-15.