SCAR-15
A foundation committed to finding treatment and a cure for individuals living with Spinocerebellar Ataxia Recessive Type 15, a rare degenerative genetic disease.
Celebrating Neurodiversity Month with a special student-led project!
In honor of Neurodiversity Month, we’re thrilled to share a heartwarming and inspiring video created by a group of thoughtful and passionate 5th graders—with the help of their dedicated teachers—who are making a big impact in their school community.
What began as a student article in their school newspaper, The Falcon Flyer, has evolved into “Neurodiverse News”—a platform created by students, for students, to highlight and celebrate neurodiversity. With support and guidance from their teachers, these students turned their vision into a podcast, and for their first-ever episode, they invited Jack Pinkham as their inaugural guest.
Jack spoke about SCAR-15, his experience living with a rare genetic disorder, and how being neurodiverse impacts him in a school setting. The students asked thoughtful, compassionate questions and modeled what inclusion and advocacy can look like at any age.
We are so proud to share this special project and celebrate the power of student voices, community support, and the beauty of neurodiversity.
👉 Watch the full video below and join us in celebrating the beauty of neurodiversity!
Our Story & Mission
Learn about our family and mission.
What is SCAR-15?
Learn about this rare degenerative genetic disorder.
Research
Learn more about the research process.
SCAR-15 Path To A Cure
Currently we are at Step 1 — We need your support to reach our goal of finding a cure.
You Can Help
Please Consider a Donation!
Your generous donations will continue to aid our mission to help fund research to develop treatments and a cure for SCAR-15.